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Special Needs Sunday: Weaning Attempt One = FAIL

28 Dec
Photo by space.game

After two months of working to wean Jenna away from her formula and to encourage eating by mouth, we’re back to where we started.  Sigh.  This past week, I really started noticing a change in her behavior.  She was acting more tired and lethargic, her eyes looked “sunken” and had dark circles under them, she wasn’t sleeping well, and her behavior was more erratic and naughty than usual (yes – I KNOW she’s 2/almost 3 and that it was also Christmastime, but it was still notable).  On top of all that, her weight began to slowly drop after maintaining right around 28 pounds for so long.

We talked to her specialists at Children’s Hospital Boston, and the recommendation is to add the formula we had removed back into her schedule and add a multivitamin.  The theory is that she essentially “hit a wall” where the decreased calories and nutrition over two months finally accumulated to a point that led to exhaustion/”malnutrition.”  She most likely has been acting cranky and naughty (and possibly not sleeping well) because she has a very hungry, rumbly feeling in her tummy and she hasn’t yet connected eating (by mouth) with a way to relieve it.  I would be grumpy too, if I had been hungry for two months!

We bumped her formula back up to her previous levels and……BANG………went right back into problems with throwing up.  Oy.  Probably because her tummy isn’t used to so much food at once anymore.  We backed off and will slowly build back up to previous levels.  It’s a slow process that reminds us to just be patient.  We’re also going to start looking into options for a therapist specializing in pediatric eating behaviors in our area.  We’re not very likely to find one in our small-town area, but we’re really hoping that we don’t have to drive long distances for therapy.

In happier news, last night she DID eat 30 Cheerios!!  We told her she could have a prize if she ate 10, so she did and asked if she could do it again.  We said, “Sure!” so she did and then asked to earn one more prize.  Thirty Cheerios is a BIG deal for this little girl!  She already asked if she could do that again today after her nap, so we’ll see what happens.  Too bad Cheerios aren’t full of fat……..

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9 Comments

Posted by on December 28, 2008 in Jenna, Special Needs

 

9 responses to “Special Needs Sunday: Weaning Attempt One = FAIL

  1. Insta-Mom

    December 28, 2008 at 6:11 pm

    Any progress is excellent…even if it is just 30 little o’s.

    I am awed by your patience and determination…and by Jenna’s. I easily would have lost my mind by now.

     
  2. Maura

    December 28, 2008 at 6:12 pm

    I so cannot imagine. I certainly hope the mouth eating catches on this time around.

    I think, however, you might be the only one in history to ever wish that Cheerios were actually fattening! 🙂

     
  3. iMommy

    December 28, 2008 at 6:31 pm

    Good job with those Cheerios, Jenna! And good luck finding a good doc!

     
  4. anymommy

    December 28, 2008 at 8:05 pm

    Seriously, would she eat them if you dipped them in butter? What about chocolate frosting?? Your patience awes me. And you know, all my kids started with cheerios, so it seems like a really good sign!

     
  5. Awake

    December 28, 2008 at 9:12 pm

    Way to go Jenna! Isn’t there a Cheerio children’s book out there? Could be an additional reward.

     
  6. Kirsten/Mama Ginger Tree

    December 28, 2008 at 11:59 pm

    You are amazing. That’s all.

     
  7. Issa

    December 29, 2008 at 4:39 pm

    That is great….well the Cheerios part. Maybe switch too the frosted Cheerios? Won’t be much better, but it’s got too have a bit more fat.

     
  8. psychmamma

    December 29, 2008 at 5:25 pm

    Thanks everyone! Anytime someone says that I’m awesome or amazing, I look behind me with a confused expression and think, “Are they talking about me??” Seriously, I don’t think I’m amazing. At least no more amazing than pretty much every mom. I’m just doing what has to be done. But the support is great, so thanks! 🙂

    The ideas about dipping them in frosting, buying the frosted kind or Honey Nut, she hates anything sweet, so that won’t work. Don’t know about dipping in butter….. Hmmm…..

    The Cheerio book is a great idea! We’ve checked it out form the library before, but as a prize, it might be great.

     
  9. Mia of General Hysteria

    December 30, 2008 at 12:39 am

    First, I am so happy that she’s eating Cheerios. They’re yummy and at least she’s eating something.

    I hope that the improvements keep coming, even if you have to change directions. I’ll keep my fingers crossed for the specialist.

     

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